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prejudices against the handicapped
I never ask for this nor do I want it. Quiet frankly MS sucks!!!! I do not have self pity because I am sick nor do I want yours.which is why I don't tell people I have it. ok well I guess I just did.But this is the first time I am admitting it to anyone. Hell I have really just admitted it to myself. It is real and it is incurable. There I said it and now own my illness. I hate the pity, stares, and stigma that comes with having MS. Pray for us, help us, love us, appreciate us, and help us find the cure we have been waiting so long for. For we have the strength to stand together and fight for our lives. For those of you who are curious what my daily life is like here is a link to help you understand. OK the optic neuritis is like this when I have a flare up, but it does effect my daily life for my vision sucked to begin with.
http://www.ms-gateway.com/understanding-ms/ms-simulator-53.htm
OK here is another link it ticked me off so bad that I wrote to Kennedy and Kerry. There is no reason for this to have ever happened had the cop just listened to her. Are you kidding me I see law suit and Rodney King all at the same time. This is the kind of thing that gets me going. She looks so good she cannot be sick. really well I look so good and I'm sick. This is the new millennium when will we stop judging people by how they look on the outside, before we get to know what is on the inside. Let me know your thoughts on this.
http://www.abc40tv.com/global/video/popup/pop_playerLaunch.asp?vt1=... with MS Says State Police Used Excessive Force in Front of Son During Traffic Stop
Thanks for your time,and enjoy the writing below.
Who are the people with Multiple Sclerosis?
We are your parents, your children, your brothers and sisters; we are the person down the street; we are that lady or fellow who may walk a little "funny" at the grocery store. We are the people that you "tsk, tsk" over because we might look "too good" to use a handicapped parking space. We are the folks who may not be able to get out to the Church or Temple every weekend; we are your peers; we are human beings.
We are the face of Multiple Sclerosis. A face that is nearly every ethnicity; that comes from nearly every country, that does not discriminate by social standing or class or financial or educational background or language or religion. We are both able to walk unassisted and use canes and walkers and wheelchair users; we jog and swim and partake in sports; we are housebound, we use scooters; we need respirators. We are everything in between. We are visually impaired and we are not. We are at every level of physical ability.
Of course, we "look so good" while we're doing it. We hear that phrase every day of our lives. Sometimes that phrase is meant as a compliment and sometimes it is meant to hurt or meant to shame us into doing something of which we may not be currently capable. We may be able to do that something tomorrow, though, or next week; Multiple Sclerosis is like that. We are like that.
Some of us are hearing impaired; yet all of us occasionally have people talk louder to us. "HOW ARE YOU D-O-I-N-G????" they'll scream, speaking to us as though we were either hearing or intellectually impaired. "YOU LOOK SO G-O-O-D!!!!"
Of course we do. Thank you very much. We are, in fact, the very best looking people in the handicapped community. We have secret beauty pageants every year, to decide which of our number is the absolute best-looking. Billy Crystal emcees, as his character Fernando; "...and you look MARVELOUS my dear; absolutely M-A-R-V-E-L-O-U-S..."
We are brave. We are fragile. We want to live, and we want to end it all. We look for support and we want to stand alone. We are Every person. We are the People with Multiple Sclerosis. We are People, Just Like You....
http://www.ms-gateway.com/understanding-ms/ms-simulator-53.htm
OK here is another link it ticked me off so bad that I wrote to Kennedy and Kerry. There is no reason for this to have ever happened had the cop just listened to her. Are you kidding me I see law suit and Rodney King all at the same time. This is the kind of thing that gets me going. She looks so good she cannot be sick. really well I look so good and I'm sick. This is the new millennium when will we stop judging people by how they look on the outside, before we get to know what is on the inside. Let me know your thoughts on this.
http://www.abc40tv.com/global/video/popup/pop_playerLaunch.asp?vt1=... with MS Says State Police Used Excessive Force in Front of Son During Traffic Stop
Thanks for your time,and enjoy the writing below.
Who are the people with Multiple Sclerosis?
We are your parents, your children, your brothers and sisters; we are the person down the street; we are that lady or fellow who may walk a little "funny" at the grocery store. We are the people that you "tsk, tsk" over because we might look "too good" to use a handicapped parking space. We are the folks who may not be able to get out to the Church or Temple every weekend; we are your peers; we are human beings.
We are the face of Multiple Sclerosis. A face that is nearly every ethnicity; that comes from nearly every country, that does not discriminate by social standing or class or financial or educational background or language or religion. We are both able to walk unassisted and use canes and walkers and wheelchair users; we jog and swim and partake in sports; we are housebound, we use scooters; we need respirators. We are everything in between. We are visually impaired and we are not. We are at every level of physical ability.
Of course, we "look so good" while we're doing it. We hear that phrase every day of our lives. Sometimes that phrase is meant as a compliment and sometimes it is meant to hurt or meant to shame us into doing something of which we may not be currently capable. We may be able to do that something tomorrow, though, or next week; Multiple Sclerosis is like that. We are like that.
Some of us are hearing impaired; yet all of us occasionally have people talk louder to us. "HOW ARE YOU D-O-I-N-G????" they'll scream, speaking to us as though we were either hearing or intellectually impaired. "YOU LOOK SO G-O-O-D!!!!"
Of course we do. Thank you very much. We are, in fact, the very best looking people in the handicapped community. We have secret beauty pageants every year, to decide which of our number is the absolute best-looking. Billy Crystal emcees, as his character Fernando; "...and you look MARVELOUS my dear; absolutely M-A-R-V-E-L-O-U-S..."
We are brave. We are fragile. We want to live, and we want to end it all. We look for support and we want to stand alone. We are Every person. We are the People with Multiple Sclerosis. We are People, Just Like You....
Views: 27
Replies to This Discussion
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Permalink Reply by Zach on -
Why would the guy use pepper spray? She wasn't attacking him, that kinda pisses me off.
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Permalink Reply by GrannyDiane on -
When my health problems started getting worse, I was still working. There, I found a lot of my co-workers were very cruel. I had someone stand there and laugh at me while I was having a major asthma attack. When they found out what triggers an asthma attack for me, that made things worse. One night they sprayed perfume into my locker. When I opened my locker, it "hit" me in the face and caused me to have an asthma attack. They thought that was funny.
When I started having a problem walking straight, everyone just laughed and made remarks about me drinking. I don't drink and they knew it, but they thought it was funny.
I have been mostly isolated in my home due to these health problems and find it very difficult to go out into the world now. It has gotten worse since Tony died. But in small ways I am still finding that people are very uncaring toward someone who is disabled.
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Permalink Reply by Jada L. on -
Granny Diane,
I am sorry that they were so mean to you. People can just suck sometimes. I hope that it did not shake you faith in humanity , and you still look for the good people out there. I suffer from Migraines due to the MS, and smells like perfume or scented candles drive me buggy too. If you are ever up my way feel free to let me know I'll put on the coffee.
Jada
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Permalink Reply by GrannyDiane on
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I know all about migraines! Have been getting them since I was 12 and just a few years ago finally pinpointed what exactly triggers them.....the same things that trigger an asthma attack, mostly.
When Tony was alive, it was easier to continue believing that people were mostly good. Tony was the one with the strong faith in that. He was the one who kept me going when I wanted to just curl up in a ball in a corner sometimes, when things were at their worst. As you can imagine, since he died, it is harder to believe in and find that goodness. Some days I'm not sure what keeps me going.
I haven't been able to drive anymore for a few years now. I hardly ever leave my home. But thank you for the invitation.
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Permalink Reply by Jada L. on
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Well you must have some faith left to be able to chat and blog here. There are still good people out there. I too was beginning to doubt it, but then I found an amazing group of people and they restored my faith in humanity. I think you are able to keep going because Tony is still with you in your heart and mind, and you know deep down what he would say to you. Sorry if that made you sad, but is true. You are welcome for the invite and I know you don't get out much but it is an open invite. Anyhow the kids are begging for me to go make supper so I have to go for now. I hope this help you.
God bless
Jada
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Permalink Reply by NeferSif on -
TY for your bravery in posting on this issue. I myself do not have MS but Bipolar and Panic/Anxiety disorder. Many people disregard people with mental illness too. They say it is all in my head and should be able to control this. They also think I am taking advantage of the system because I am on disability. They don't believe what they can't see. But if they saw me without my meds in full breakdown mode, they would feel differently. I have been hospitalized at least 8 times in my life. This disorder does not just go away. It is something that is permeate and has to be managed with medication like any other disability. Like many of these disorders, the meds do not always work. It is hit and miss. And what works for a while, may not work tomorrow. I hope that even if it takes a while for a cure to be found, maybe the general public will be educated on these disabilities. Then they may not be so quick to judge.
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Permalink Reply by Jada L. on
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Since I wrote this it has been posted on tons of websites for neurological diseases. I would like to take this time to thank Chris for letting me post it on other sites . In turn I have given others permission to post it on there site. In time I know in my heart that a cure will be found. And that it will in part have someting to do with posts like this and reasearch done by people like me.May that day come soon so that I, and others in situations like mine can have our cure and lives back.
God bless you all,
Jada
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