I never ask for this nor do I want it. Quiet frankly MS sucks!!!! I do not have self pity because I am sick nor do I want yours.which is why I don't tell people I have it. ok well I guess I just did.But this is the first time I am admitting it to anyone. Hell I have really just admitted it to myself. It is real and it is incurable. There I said it and now own my illness. I hate the pity, stares, and stigma that comes with having MS. Pray for us, help us, love us, appreciate us, and help us find the cure we have been waiting so long for. For we have the strength to stand together and fight for our lives. For those of you who are curious what my daily life is like here is a link to help you understand. OK the optic neuritis is like this when I have a flare up, but it does effect my daily life for my vision sucked to begin with.
OK here is another link it ticked me off so bad that I wrote to Kennedy and Kerry. There is no reason for this to have ever happened had the cop just listened to her. Are you kidding me I see law suit and Rodney King all at the same time. This is the kind of thing that gets me going. She looks so good she cannot be sick. really well I look so good and I'm sick. This is the new millennium when will we stop judging people by how they look on the outside, before we get to know what is on the inside. Let me know your thoughts on this.
with MS Says State Police Used Excessive Force in Front of Son During Traffic Stop
Thanks for your time,and enjoy the writing below.
Who are the people with Multiple Sclerosis?
We are your parents, your children, your brothers and sisters; we are the person down the street; we are that lady or fellow who may walk a little "funny" at the grocery store. We are the people that you "tsk, tsk" over because we might look "too good" to use a handicapped parking space. We are the folks who may not be able to get out to the Church or Temple every weekend; we are your peers; we are human beings.
We are the face of Multiple Sclerosis. A face that is nearly every ethnicity; that comes from nearly every country, that does not discriminate by social standing or class or financial or educational background or language or religion. We are both able to walk unassisted and use canes and walkers and wheelchair users; we jog and swim and partake in sports; we are housebound, we use scooters; we need respirators. We are everything in between. We are visually impaired and we are not. We are at every level of physical ability.
Of course, we "look so good" while we're doing it. We hear that phrase every day of our lives. Sometimes that phrase is meant as a compliment and sometimes it is meant to hurt or meant to shame us into doing something of which we may not be currently capable. We may be able to do that something tomorrow, though, or next week; Multiple Sclerosis is like that. We are like that.
Some of us are hearing impaired; yet all of us occasionally have people talk louder to us. "HOW ARE YOU D-O-I-N-G????" they'll scream, speaking to us as though we were either hearing or intellectually impaired. "YOU LOOK SO G-O-O-D!!!!"
Of course we do. Thank you very much. We are, in fact, the very best looking people in the handicapped community. We have secret beauty pageants every year, to decide which of our number is the absolute best-looking. Billy Crystal emcees, as his character Fernando; "...and you look MARVELOUS my dear; absolutely M-A-R-V-E-L-O-U-S..."
We are brave. We are fragile. We want to live, and we want to end it all. We look for support and we want to stand alone. We are Every person. We are the People with Multiple Sclerosis. We are People, Just Like You....